The story of our family and God's grace on this earthly journey when things do indeed change "in the blink of an eye."
Hi Amye Jo,Beautiful pictures. I wanted to ask you a question. I see that you put Sophie Kate in a lot of dresses. How do you do a tube feeding with a dress? I don't put my daughter in too many dresses because when I need to feed her, it is hard to get to the button. However, I would love to have her wear more dresses. I would love to hear how you manage it.Thanks so much,Michelle
SK gets 3 tube feedings during the day, but it's not by gravity, it is on a pump. SK has never been able to handle too much formula at one time. So we just hook her up and let it run about 30 minutes at a set rate. It ends up just looking like a long cord coming out from underneath her dress. She doesn't get exposed b/c like you I have gotten to where I can do that stuff in my sleep, so it's not like I'm having to hike up her dress or anything like that, it's still very discreet. Hope that helps. Amye
Thanks, Amye. We just got a portable pump, so with the longer tube, perhaps it will work. I am just so concerned with being discreet and modest, and that never worked when we were doing bolus feeds.Thanks so much for the help. :)Michelle
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