Thursday, February 12, 2009

GI problems

Hey everyone, Sk and I went to feeding clinic on Monday (Feb. 9).  It went very well, there were 4 people involved (a nurse, speech therapist, nutritionist and our case manager) and they were all very positive about the experience.  I really thought when they saw SK try to eat that they would say we need to give up on this, that she really was not a candidate for oral feeding, but that was not the case.  Sophie Kate did very good eating for them, she had no choking/coughing/gagging episodes while we were there.  Eventually we are going to be on a schedule of feeding her orally 2 times a day, I say eventually b/c we are getting ready to start Sophie on her new formula.  This new formula will have a higher calorie content than her baby formula, so we won't have to give her as much of the new formula as we did her baby formula to get in the calories that she needs, does that make sense?  Once we get her completely switched over to the new formula (Pediasure) then that will free up some time during the day for her to maybe get hungry and try some oral feedings, we are still probably a few weeks away from getting all of this completely worked out.  It really depends on how Sophie Kate does on the Pediasure, hopefully the transition will be smooth, b/c our first concern has to be meeting SK's caloric needs before we can add other things in, she must be tolerating her feeds.

On the subject of SK tolerating her feeds, well she just hasn't been lately.  Actually over the past 3-4 weeks we have seen a gradual increase in the throwing up of the food. Tomorrow (Fri. Feb. 13) SK will be seeing her surgeon and we will be getting an upper GI to see if the surgery that was done March of last year to prevent reflux is still intact.  Today (Thurs. Feb. 12) has actually been the worst day this week she has only been able to keep down one of her feedings today, so I am glad that they are getting us in tomorrow.  She's been pretty irritable and miserable today.  We need answers tomorrow and I am so afraid as with so many of her doctors appts. that we may leave there with no answers to our questions.  I'll update tomorrow when I can.

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